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Posted by: thepinetree on 08/02/2013 02:30 PM Updated by: thepinetree on 08/02/2013 02:53 PM
Expires: 01/01/2018 12:00 AM
:



Cross Country Run to Find a Cure for Batten Disease

Vallecito, CA... Noah Coughlan is running for the cure for Batten Disease, a rare brain disease. He's running from San Francisco to Boston. Noah's personal connection to this disease is found in his past. Noah knows two sisters with the rare Batten Disease, one of whom passed within the past year. Several people with Batten Disease live in Utah where Noah expects to get some of the involved families on local TV stations to help heighten the awareness of this horrible and rare disease. He has already been on KTVU Channel 2 and interviewed by several hard copy newspapers. You may have seen him today on Hwy 4 heading up the hill. This story is unique and can be found on his website included inside with more pictures...









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